Publications

From the HealthyVOICES data:

2015

Edelblute, Heather B. & Jill A. Fisher (2015) Using “Clinical Trial Diaries” to Track Patterns of Participation for Serial Healthy Volunteers in U.S. Phase I Studies. Journal of Empirical Research on Human Research Ethics 10 (1): 65-75.

Monahan, Torin & Jill A. Fisher (2015) “I’m Still a Hustler”: Entrepreneurial Responses to Precarity by Participants in Phase I Clinical Trials. Economy & Society 44 (4): 545-566.

2016

Cottingham, Marci D. & Jill A. Fisher (2016) Risk and Emotion Among Healthy Volunteers in Clinical Trials. Social Psychology Quarterly 79 (3): 222-242.

2017

Cottingham, Marci D. & Jill A. Fisher (2017) From Fantasy to Reality: Managing Biomedical Risk Emotions in and through Fictional Media. Health, Risk, and Society 19 (5-6): 284-300.

2018

Cottingham, Marci D., Julianne M. Kalbaugh, Teresa Swezey, & Jill A. Fisher (2018) Exceptional Risk: Healthy Volunteers’ Perceptions of HIV/AIDS Clinical Trials. Journal of Acquired Immune Deficiency Syndromes 79: S30-S36.

Fisher, Jill A., Lisa McManus, Marci D. Cottingham, Julianne M. Kalbaugh, Megan M. Wood, Torin Monahan, & Rebecca L. Walker (2018) Healthy Volunteers’ Perceptions of Risk in U.S. Phase I Clinical Trials: A Mixed-Methods Study. PLOS Medicine 15 (11): e1002698.

Fisher, Jill A., Lisa McManus, Megan M. Wood, Marci D. Cottingham, Julianne M. Kalbaugh, Torin Monahan, & Rebecca L. Walker (2018) Healthy Volunteers’ Perceptions of the Benefits of their Participation in Phase I Clinical Trials. Journal of Empirical Research on Human Research Ethics 13 (5): 494-510.

McManus, Lisa & Jill A. Fisher (2018) To Report or Not to Report: Exploring Healthy Volunteers’ Rationales for Disclosing Adverse Events in Phase I Drug Trials. AJOB Empirical Bioethics 9 (2): 82-90.

Walker, Rebecca L., Marci D. Cottingham, & Jill A. Fisher (2018) Serial Participation and the Ethics of Phase 1 Healthy Volunteer Research. Journal of Medicine and Philosophy 43 (1): 83-114.

Williams, Quintin & Jill A. Fisher (2018) Captive to the Clinic: Phase I Clinical Trials as Temporal Total Institutions. Sociological Inquiry 88 (4): 724-748.

2019

Fisher, Jill A. (2019) Commentary on Zvonareva et al.: Exploring the Many Meanings of ‘Professional’ in Research Participation. Clinical Trials 16 (6): 571-573.

Fisher, Jill A., Torin Monahan, & Rebecca L. Walker (2019) Picking and Choosing Among Phase I Trials: A Qualitative Examination of How Healthy Volunteers Understand Study Risks. Journal of Bioethical Inquiry 16 (4): 535-549.

McManus, Lisa, Arlene M. Davis, Rebecca L. Forcier, & Jill A. Fisher (2019) Appraising Harm in Phase I Trials: Healthy Volunteers’ Accounts of Adverse Events. Journal of Law, Medicine & Ethics 47 (2): 323-333.

Walker, Rebecca L. & Jill A. Fisher (2019) “My Body Is One of the Best Commodities”: Exploring the Ethics of Commodification in Phase I Healthy Volunteer Clinical Trials. Kennedy Institute of Ethics Journal 29 (4): 305-331.

2020

Jain, Nupur, Marci D. Cottingham, & Jill A. Fisher (2020) Disadvantaged, Outnumbered, and Discouraged: Women’s Experiences as Healthy Volunteers in U.S. Phase I Trials. Critical Public Health 30 (2): 141-152.

Monahan, Torin & Jill A. Fisher (2020) Sacrificial Labour: Social Inequality, Identity Work, and the Damaging Pursuit of Elusive Futures. Work, Employment & Society 34 (3): 441-456.

2021

Fisher, Jill A., Megan M. Wood, & Torin Monahan (2021) Speculating on Precarious Income: Finance Cultures and the Risky Strategies of Healthy Volunteers in Clinical Drug Trials. Journal of Cultural Economy 14 (4): 464-484.

Fisher, Jill A., Lisa McManus, Julianne M. Kalbaugh, & Rebecca L. Walker (2021) Phase I Trial Compensation: How Much Do Healthy Volunteers Actually Earn from Clinical Trial Enrollment? Clinical Trials 18 (4): 477-487.

Kalbaugh, Corey A., Julianne M. Kalbaugh, Lisa McManus, & Jill A. Fisher (2021) Healthy Volunteers in US Phase I Clinical Trials: Sociodemographic Characteristics and Participation Over Time. PLoS ONE 16 (9): e0256994.

2022

Cottingham, Marci D. & Jill A. Fisher (2022) Gendered Logics of Biomedical Research: Women in U.S. Phase I Clinical Trials. Social Problems 69 (2): 492-509.

Walker, Rebecca L., Douglas MacKay, Margaret Waltz, Anne Drapkin Lyerly, & Jill A. Fisher (2022) Ethical Criteria for Improved Human Subject Protections in Phase I Healthy Volunteer Trials. Ethics & Human Research 44 (5): 2-21.

2023

Fisher, Jill A. & Torin Monahan (2023) Mutual Emotional Labor as Method: Building Connections of Care in Qualitative Research. The Qualitative Report 28 (11): 3192-3212.

Waltz, Margaret, Arlene Davis, & Jill A. Fisher (2023) “Death and Taxes”: Why Financial Compensation for Research Participants is an Economic and Legal Risk. Journal of Law, Medicine & Ethics 51 (2): 413-425.

Other related publications:

Fisher, Jill A. (2020) Adverse Events: Race, Inequality, and the Testing of New Pharmaceuticals. New York: New York University Press.

• Winner of the 2021 Robert K. Merton Book Award, given by the Science, Knowledge, and Technology Section of the American Sociological Association
• Winner of the 2022 Donald W. Light Book Award for Applied Medical Sociology, given by the Medical Sociology Section of the American Sociological Association

Fisher, Jill A. (2007) “Ready-to-Recruit” or “Ready-to-Consent” Populations?: Informed Consent and the Limits of Subject Autonomy. Qualitative Inquiry 13 (6): 875-894.

Fisher, Jill A. (2009) Medical Research for Hire: The Political Economy of Pharmaceutical Clinical Trials. New Brunswick, NJ: Rutgers University Press.

Fisher, Jill A. & Corey A. Kalbaugh. (2011) Challenging Assumptions About Minority Participation in U.S. Clinical Research. American Journal of Public Health 101 (12): 2217-2222.

Fisher, Jill A. (2013) Expanding the Frame of ‘Voluntariness’ in Informed Consent: Structural Coercion and the Power of Social and Economic Context. Kennedy Institute of Ethics Journal 23 (4): 355-379.

Fisher, Jill A. (2015) Stopped Hearts, Amputated Toes, and NASA: Contemporary Legends among Healthy Volunteers in US Phase I Clinical Trials. Sociology of Health and Illness 37 (1): 127-142.

Fisher, Jill A. (2015) Feeding and Bleeding: The Institutional Banalization of Risk to Healthy Volunteers in Phase I Pharmaceutical Clinical Trials. Science, Technology, & Human Values 40 (2): 199-226.

Fisher, Jill A. & Marci D. Cottingham (2017) This Isn’t Going to End Well: Fictional Representations of Medical Research in Television and Film. Public Understanding of Science 26 (5): 564-578.

Fisher, Jill A. & Rebecca L. Walker (2019) Advancing Ethics and Policy for Healthy-Volunteer Research through a Model-Organism Framework. Ethics & Human Research 41 (1): 4-14.

Fisher, Jill A. (2019) Research Payment and Its Social Justice Concerns. American Journal of Bioethics 19 (9): 35-36.

Waltz, Margaret, Anne Drapkin Lyerly, & Jill A. Fisher (2023) Exclusion of Women from Phase I Trials: Perspectives from Investigators and Research Oversight Officials. Ethics & Human Research 45 (6): 19-30.